IN THE DARK LIES AN UNSEEN MONSTER...
I was speaking with a friend about his daughter's battle with cancer yesterday and he described it, not as a battle, but as a game of nightmare hide and seek. He feels like he and his family are constantly running and hiding from a tireless, unrelenting and unseen monster, always at their heels.
We have all stirred awake from a nightmare so vivid and tangible that even awake you question reality! For my friend the battle against cancer has been a nightmare that his family can't seem to wake up from, there is no relief, only the next obstacle, the next unseen monster to overcome. This is the truth of childhood cancer. Even in cases that go relatively smooth the threat of tragedy is always just around the corner.
Even in remission the monster of relapse is constantly lurking in the abyss, peering back and abiding his time. If relapse is avoided, these kids often suffer long term irreparable effects for the rest of their lives. The chemo and radiation drugs are very harsh on their tiny bodies. Research and support for childhood cancer is woefully underfunded thus new breakthroughs are very few and far between. The waters are murky and the woods are dark and as with everything, money and politics are what seem to be obscuring priorities. In the end something has to change, there has to be a better way, there must be a cure hiding in the dark. But I am not a doctor or a researcher or much of anything. I am just some guy with a camera standing alone, batting away at the darkness with my flashlight. My hope is that over time my flashlight will begin to shine brighter, that people will join me and their lights will enhance mine and the darkness will begin to fade away. I have already seen it, I can see other people's lights in the distance, they are gathering, we are gathering. I know that I am nobody, that I have not suffered like these families have. I know that I can't come close to understanding their pain. All I can do is pull my head from the sand and do something with the hope that my friend can stop running!
Wow lovely words and well said I am on that child cancer hide and seek game and it's so true all those words thank you
Wow. The photo of the girl in the woods wielding a light saber could be my daughter (just finished up Leukemia treatment). Every word you wrote is true and your friend's description of "a game of nightmare hide and seek" resonates loud and clear. Thank you for bringing light to this battle that too many children are fighting. You are very talented!
These are just amazing. And inspiring! I have wanted to create artwork surrounding my daughter's battle with leukemia, and this urges me to start brainstorming. Incredible stuff!
Thank you! Thank you for being a voice for our children! They deserve so much more!
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